It's amazing the things we can make happen, when we really set our minds to it. I thought about everything that's happened that lead me to sit in a room with three almost-strangers; sharing with them the string of events & reasons of why we were there.
Explaining to them what happened. Unable to control the tears or my emotions, unable to look at them in the eye. But they were certainly looking at me, most importantly they listened.
They didn't make me feel like a pity case. They were moved by our story & several others we told them about...other angels who lost their lives to this disease, in similar ways. They were astounded by the statistics of DKA & the increase of Type One diagnoses in the last decade.
Even though they were in the medical field- one a doctor, head of a hospital ER & also president of AAP; they listened with interest & awe, as they were learning all of this for the first time. Maybe they were...
They were in complete agreement that there needs to be more awareness & education. Not only on the parent level, but on the doctor & nurse level (because we shared with them misdiagnoses stories too) & on the school level too. Everyone, my mouse. Everyone needs to be aware.
...
After that, it was just working out the technical details. They were definitely encouraged & impressed by the fact that the whole campaign will be funded by Beyond Type One & that they won't have to lift a finger as far as distributing the actual material (posters, flyers, etc.) to the doctor's office.
There is just one matter that has to be approved by their board, which is getting an ok on giving Beyond Type One a copy of all the doctor's mailing list. Understandably, this is important protected info, they just can't have anyone have it.
That meeting will be at the end of March. If for some reason they're not ok with it, we've worked out a plan B & even C. The plan B worked for Texas....so there's hope. There's always hope, my angel.
...
Debbie is a true gem. Not only during the meeting in explaining the details of the campaign but in driving us there (because she knew I was nervous) & talking to me on the way over there, so I wouldn't be so nervous.
Then when we said good-bye she thanked me for sharing your story & said that "we will always keep Hailey's memory & legacy alive." <3
Can you believe it mouse?
Here I am thanking her with all my heart for joining me on this journey & feeling as though she really was heaven sent to guide me....yet she thanked me.
Really, in the end we are just mothers. Her son almost died when he was diagnosed. He was also in DKA. She realizes & knows our story could of easily been hers. This scared her enough to make a promise that she would do what she could to make sure that didn't happen to anyone else...
She cares enough to follow through on that promise. Only a mother's love could move mountains, my angel. There are no boundaries on a mother's love.
...
There are no other ulterior motives either. Other than to help others.
Us, the BTO organization- we're just people who have been effected by this disease in some way or another & want to see it gone altogether, one day.
The BTO organization was founded & is run by philanthropists who have the money & power to do more than we can; the little people. But they need our help too. Our voices make a difference.
...
Good people exist my mouse.
When you are constantly threatened by the dark, when you feel as though your world could crash at any moment....
It's in those times when we desperately need to know that good people, good things...they still exist.
It's our only hope. It's our only salvation to keep us going.
Like Debbie said too, keeping your memory alive will always be a reason too.
I love you my angel.
Every moment of every day.
I hope you are smiling in heaven.
Forever,
Your mommy <3
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| Your sister did an awesome job in the strings concert. She wore this dress in your honor. She said to me in the morning, "It's going to be a great day Mommy." I got good luck wishes from Sissy, Daddy, Auntie & Ayde too. It really was a great day. <3 |
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